Ashleigh's Fight Against SMA

Ashleigh Michelle's Bike Run and Benefit for SMA

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Saturday July 28, 2012 9:00 AM - 6:00 PM
The Jockey Club Rt 44 Raynham to Francis Farm, 27 Francis Farm Road, Rehobeth  (map)

 

Come Help Celebrate the Life of Ashleigh Michelle!

My niece Ashleigh was born in the summer of 2011. At the young age of 6 months she was diagnosed with Spinal Muscular Atrophy Type I (SMA). One in 6,000 babies are affected by this disease. It is a disease that affects Ashleigh's muscles leaving her with limited mobility and also creates respiratory issues. As time progresses she will no longer be able to move at all. At this time there is no cure for this disorder. The prognosis is poor, 90% of babies die before the age of 2.

The Bike Run leaves out of The Jockey Club Rt 44 Raynham MA. Registration starts @ 9am w/coffee and muffins. Kickstands up @ 10:30am for a scenic, police escorted 50 mile bike run finishing at Francis Farm, 27 Francis Farm Rd, Rehobeth MA. $30 per bike, $20 for passenger.

If you can't make the bike run, please join us afterwards at the Benefit from noon to 6:00pm @ Francis Farm! $30 per adult, $10 per child.

To pre-register please use the registration link on the main page. Payment by credit/debit card may be used through PayPal by clicking the Donate button. All donations are gladly accepted! Registration day of event is cash only. This is a rain or shine event.

Join us for Food, Live Music, Silent Auctions, and 50/50 Raffle. Facility features Burn Out Pit, Softball Field, Volleyball, Horseshoe Pit, Bocce Ball, Museums and Moonwalk.

Lunch is served at 1pm with a cash bar.

Ashleigh and her family want to spread awareness about SMA. Our goal is to raise enough funds to find a cure for SMA to save baby Ashleigh's life. Please join us in the fight against SMA!

For further information please contact Melissa Biltcliffe at [email protected] or at (774) 274-7961.

Thank you for your support!

 

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